Useful Links

http://www.pacifier.com/~mstephe/
A web site set up by John Harris after his son was diagnosed with IRD. John also runs a support email ring for families with affected children. We found this to be extremely welcoming and informative and is for families of children with any peroxisomal disorders.

http://www.angelfire.com/nc/fireplace/IRDListRing.html
Web ring for families. Pictures and contacts of other families

http://health.groups.yahoo.com/group/Peroxisomal_Disorders/ Yahoo group set up by Shannon Butalla to share information. Not been used much but potentially a very useful way for families to stay in touch and ask questions. Will need to register with Yahoo and email Shannon to be invited to join.

Research:

http://www.martinezfoundation.org/ Manuela Martinez Foundation, as described on the Manuela Martinez Page of this site

http://peroxisomes.amc.uva.nl/peroxisomes/index.jsp

An integrated European project to study the biological function of the peroxisome